I became a prenatal genetic counselor because I love babies, pregnancy, and childbirth, and I love being part of that process for people. These days I see mostly hEDS patients in my private practice, and far too often they come to me with the same concern: fear and guilt about wanting to have a baby. This is largely because of a scarcity of information on hEDS, pregnancy, and childbirth.

hEDS and HSD patients don't belong in the genetics clinic. That's the prevailing assumption, anyway.

At least half a million people in the U.S. have hEDS or HSD. Most are undiagnosed. Here is what that looks like in practice.