I Have hEDS. Now What? Part 2
POTS, MCAS, and GI symptoms show up alongside hEDS often enough that they’re worth understanding on their own. Part 2 of this two-part series covers practical ways to manage them, what to tell your providers, and the red flags that point to something beyond hEDS.
I Have hEDS. Now What? Part 1
An hEDS or HSD diagnosis answers one question but leaves the next one wide open: now what? Part 1 of this two-part series covers where to start, from physical therapy and a medication review to everyday habits, pain, fatigue, and mental health.
Comprehensive Care for hEDS/HSD Should Include a Genetic Counselor
hEDS and HSD patients don't belong in the genetics clinic. That's the prevailing assumption, anyway.
Hypermobility Disorders Deserve Dedicated Care
At least half a million people in the U.S. have hEDS or HSD. Most are undiagnosed. Here is what that looks like in practice.
Understanding Ehlers-Danlos Syndromes (EDS)
The Ehlers-Danlos syndromes (EDS) are a group of inherited conditions that affect connective tissue.